What a great post. My situation is similar to yours. I have a mutation where P53 function is lost. I met with my surgeon recently to discuss the “elephant in the room”. I asked his opinion on odds of being cured, overall survival, and likelihood of PCa returning after I stop Orgovyx and Zytiga in 19 months.

He was pleased as to my current condition after salvage RALP and IMRT. Forstbthe hood news: No co-morbidities, undetectable PSA, little weight gain, little loss of muscle mass and a positive attitude which he said might be the best thing I’ve got going. Then came the news I expected but didn’t want to hear. Cure is unlikely. He expects the PCa to return within 5 years. (My medical oncologist thinks I’ll go 7 to 9 years). If I’m lucky I’ll just die with the disease and not from it.

No one except fellow stage 4 cancer patients can grasp the seriousness of the situation. All others just believe that if you get PCa you get surgery and/or radiation and life continues as before and you’ll never have to think about it again.

If only life was that simple.