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EB-N5 and Idiopathic PN: Long-term Usage?
Neuropathy | Last Active: Sep 25 11:37am | Replies (39)Comment receiving replies
@ray666 Ray, interesting update on EB-N5. The fact that the neuropathy had not progressed as of 10 months ago and balance appears to be no better and no worse, to me that seems to be an improvement since slow progression is more common. So, perhaps in your case, the EB-M5 is helping. Steady as she goes!
Replies to "@ray666 Ray, interesting update on EB-N5. The fact that the neuropathy had not progressed as of..."
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Good morning, Ed (@njed) I'd like to think that the lack of measurable progression is thanks to EB-N5 alone, but because my recent septic bout has muddied the waters, I can't be 100% sure – 100% sure of a number of things. No. 1: Has there really been no progression in my PN? The infection had its own way of messing with my balance. Since I'm still dealing with some sepsis symptoms (shortness of breath is the most bothersome), when I have an extra-wobbly moment, I'm always asking myself: Is this just the sepsis? Or has my PN sneakily progressed? That's what I mean by 'muddied the waters.' And why one other thing I can't be absolutely sure of is EB-N5: a. Has it really helped (and behind the sepsis, there's been no progression, or b. Has it not helped at all, and my extra-wobbly moments ARE indicators of progression, or c. Is EB-N5 merely putting up a good fight, and if, in the long run, it's helping with my PN … well, it's too soon to tell.
Ah, the Madness of King PN! 🙂
Cheers!
Ray (@ray666)