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Does your Artificial Urinary Sphincter AUS800 leak?

Prostate Cancer | Last Active: Sep 13 7:52am | Replies (15)

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@grandpun

Hi Sia H and Bud,
Not to brag but say my AMS 800 experience is so fantastic. Obviously I had a super surgeon. What surprised me is his student (resident?) did the work under his direction. She maybe had an advantage with very small and, no doubt, steady hands. The doc turned out to be a regions expert in this as well as gender affirming surgery; so he knows the territory.
I was (and technically still am) totally incontinent from my RALP 01/22. I went about 6-weeks before AMS was activated. Till recently didn't know there were different sizes of cuffs; mine must be perfect fit. Maybe my static pressure is somewhat higher than most because it takes me multiple squeezes to completely empty. But then it's done and shut! I do wear a #2 "daytime" pad to get the last drip if any. In 15-months of using it I've had only two major leakages. And both those recently. Last July I majorly leaked while asleep and have no idea why or how. I must have pinched the bulb in my sleep. And just last week on a long drive I filled the #2 pad (they do hold a lot!).
But otherwise, NO problems.
And I had a cystoscope check last month and doc saw no erosion at the cuff site.
With practice I've accomplished using a stand up urinal. I do have to open my fly and belt. Ring and pinkie on one hand holds my pants down and index and thumb aims my penis (not easy) and other hand also uses ring and pinkie to hold pants down and back so thumb and index finger work the squeeze bulb. It takes some extra time but works without completely dropping my pants.
In this case, don't 'Aim High' like they taught us in school. Hope you can laugh about all this.
Good luck to both of you and all our fellow AMS users. It does take time and practice to learn how our bodies and social lives work with the complicated thing.
Keep up your spirits and don't hesitate to pester your doctor/s. They work for YOU.

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Replies to "Hi Sia H and Bud, Not to brag but say my AMS 800 experience is so..."

What a world we live in. After so many years of poking and inserting and surgeries I am ok with it all. Funny part being it is hard to get embarrassed any more. When I go to the bathroom, I drop my pants past my knees. One handed I can squeeze and go. People look sometimes and wonder what you are doing. I say it is so nice not to have a catheter, and be able to pee, even standing up. They shut up....Way too many people have taken care of me and they have seen it all. My AUS is so nice to have. When I start feeling down, I look at the world around me. I volunteer at the clinic 3 days per week. I see patients and I start to feel good again. The thing I have to deal with is one handed or two. Enjoy each day and be thankful for what you have. It can change tomorrow.