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Myelomalacia: Let's connect

Spine Health | Last Active: Sep 14 10:01pm | Replies (62)

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@sarahmargaret

Hello everyone
I have just joined and my sympathies to all of you whom are struggling with various health issues of spine.
Before I joined I was reading posts regarding Myelomalacia and mine is in cervical

I couldn’t understand why I am losing more function and my legs are the worst, I’m manually pumping them up with weights just to be able to feel my legs and have some power/ strength but it doesn’t last very long.

I have lower back issues but after reading some of your symptoms I relate to each one. I’ve lost position sense, if I look behind I loose balance so I’ve learned to turn my whole body. I’ve lost some temp sense, and I can’t get around in dark , if I shut my eyes / rhomberg test I fall backwards
I find it difficult and time consuming managing multiple conditions and orthostatic hypotension etc
But it was really comforting to read others comments and similar symptoms relating to Myelomalacia as many Drs etc aren’t familiar with this condition

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Replies to "Hello everyone I have just joined and my sympathies to all of you whom are struggling..."

@sarahmargaret Welcome to Connect. I'm glad you are finding it useful for understanding your own conditions. That is what is so good about it because we all learn from each other. Have you had treatment to help your spine condition? Do you have a specialist advising your care?