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Prednisone and change in hair texture
Polymyalgia Rheumatica (PMR) | Last Active: Sep 16 11:28pm | Replies (28)Comment receiving replies
Yes, 60 mg in the first year. Doctors said since I was being treated it wouldn’t be accurate. My sed rate was never over 40, they also decided since it wasn’t over 60, no point which is their marker. I gained 40 pounds, couldn’t sleep and ate everything available. I also have Fuchs dystrophy so wonder if that causes my vision issues.
I think I read here that after almost 8 years on constant prednisone..if GCA, it would have been treated.
During that time, I had 2 knee replacement with also a revision, Covid twice. My body doesn’t like any of that. Also, I’ve never been so sick since the vaccines. Such is life but I’m resilient.
Interesting you had general anesthesia for your procedure.
What was your CRP and Sed rate? Here, the sed rate seems to rule…Las Vegas. One CRP was over 1000 but was told lab error. The auto immune panel was positive but when each disease was looked at, nothing was positive. Thank you so much for your reply. I’m still trying to get more facts.
Karo
Replies to "Yes, 60 mg in the first year. Doctors said since I was being treated it wouldn’t..."
My first sed rate, after symptoms of PMR, then GCA, untreated for a year, was 128, I think. CRP might have been 16. My rheumatologist doesn't like sed rate, said it's a really old test. I didn't have any reaction to COVID vaccines and so far have not caught it.
Also PMR and GCA made me anemic, very fatigued. It's the anemia of chronic inflammation.
I read that GCA relapses in about 50% of cases.
My mother in law had GCA and my maternal aunt. I knew about it, but was surprised when I found out I had it. All our symptoms were differen, but in line with the symptoms described.
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Sorry, forgot to answer your question.
Am on 8 mg a day, last flare was after Covid 2 months ago, methylprednisolone dose pack, then to 10mg, now tapering down. The Kevzara is in hopes of getting totally of prednisone because of osteoporosis risk. In hindsight I was basically forced to take high doses of prednisone for GCA because of the worry of blindness but didn’t realize it could return.
Thank,you again.
Karo