12 yrs of chronic pain, 14 lumbar procedures, new Rx bad!

Posted by deankay @deankay, Aug 4 1:10pm

For reasons no one explains but, the DEA is simply eliminating all Opioids. A simple and easy way to treat the hundreds of abusers by punishing those with true regional chronic pain syndrome. So after 6yrs 10 months of taking hydromorphone 8mg 5XDay, I was able to managed a large portion of lumbar pain for a 6 foot 3 inch guy. Now a problem with a new medication, Buprenorphine and Naloxone 8mg / 2mg. Problems started fast with teeth. I have never had a cavity, crack or gum issues. Now, this film goes under the tongue until it melts. My rear teeth cracked, top & bottom and broke off. Besides severe gas, diarrhea and very marginal lumbar pain help, I was scratching my head. Looking for side effects on reputable websites listed; Teeth decay, back pain, etc. What am I in for in the future? With electrodes in the epidural space, I may not find a Dr. willing to correct the problem as now surgery is extremely invasive. Dr’s have to do this when fusing a vertebrae to and other. So know, it depends on the neurosurgeon’s experience and tolerance for risk associated with open time in the OR. They may pass on my complex problem and show me the door. No one likes serious surgeries, but even fewer want to live with bad pain and a non-existent quality of life.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jenatsky

@deankay sorry for you plight regarding buprenorphine. Unfortunately you were prescribed the wrong formulation for chronic pain. Unless you’re in recovery for an addiction for chronic pain you need the buprenorphine patch. I’m prescribed 20mcg x7 days that provides 24/7 relief. The dose can vary. I was started on 15mcg but it was ineffective after 2 weeks and it was increased. If I may ask what type of provider prescribed your meds?

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Wow I do not know how you can judge what type of pain relief I require.
I have been on opioid medication for years and in 2008 began a clinical trial of bupe for pain.
I had been on massive dose's of just about every opiate. From codeine to morphine. I was taking 90mg morphine three times a day when I went into the hospital (Columbia Presypeterian NYSPI) I had a horrible time until I was given the first dose of bupe
Ii was a blind study so I did not know my dose until I left. My dose was 24mg a day I found out.
doctor there arranged for a prescriber when I got out who gave me the full three 8mg pills a day
In 2009 I weaned off with hardly a WD symptom because I went down slowly.
After a year off my pain became too much so I found a clinic who would prescribe bupe
Started anew at 2mg three times a day and since 2011 my tolarence grew and I am back up to the 8mg subutex pills.
I would add that I have had three surgeries where I used only my bupe for post op pain and even for that it has worked. Hip replacement then I had elbow replacement and since that failed I had a second replacement (Still failed my arm is not stable and it still hurts-Dr left two items in my arm BTW a loop and another item)
Everyone is different as is every case. Of course I would not suggest 24 to 32mg to a opiate naive person but in my case with my history of strong med's my dose was okay

Glen

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@jenatsky

@gbear1953 im on buprenorphine too but the patch that provides 24/7 pain relief. Unless you need the pill due to past addiction issues I’d try to switch.

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I was on 90mg morphine three times a day so yes I was dependant but not addicted.
There is a major difference.
My trial had me on 24mg a day If I were to switch to a patch I would go into withdrawal so why would I do that?
Bupe also has gotten me through three major and painful surgeries.
The patch is for people on low dose opiate med's or none

Glen

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@lj1952

So far, I'm mostly combatting severe, chronic pain with generic Norco, thanks to a good pain specialist. Opioids definitely have a place in the pharmaceutical treatment of severe, chronic pain. My only hope is that my doctor does not retire or die before I do. It seems that such brave pain specialists are rare. I offer my devout hopes for better days for everyone who's being denied opioids just because *some other people NOT under a doctor's care* are abusing them! It's completely unfair to punish those of us with legitimate pain treatment needs; it's throwing out the baby with the bath water. It's also picking the low-hanging fruit: i.e., those of us who abide by the rules and do not exceed our dosage or "doctor shop" to obtain more medication. We should not be punished for the criminal doings of of some addicted people. It takes courage for a doctor to prescribe opioids in this climate of lazy law enforcement. Punish the addicted who are committing crimes, for God's sake! Leave the rest of us ALONE.

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Punish them? Why? first off maybe they are addicts so why not switch them to bupe or methadone rather than punish?
I guess maybe you meant in a general way and did not mean to lock em up.
remember some "addicts" may have simply been pain patients who got hooked.
I think the whole system stinks. We allow booze and tobbaco which kills many, many more people yet demonize pain meds.

live and let live-"Freedom" as so many spout! As long as they are "free" to do their booze

Glen

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@gbear1953

Thank you
I am taking buprenorphine and I am grateful that my pain clinic is okay with that.
My low back and leg pain is "managed" with the bupe but night's can be a horror as I sleep on my left side or back and it causes pressure on the nerve. I was about to say I often wake up nearly screaming in pain but fact is I Always wake up with the pain.
I try and not take my dose but sometimes have to, Anyway, the rest of the next day I am okay
Clinic talked about this implant. I value your input and have heard from others so I am going to decline the offer of a nerve stim.

Glen

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Thanks for the comment ,Glen. I hope that this is the right decision for you. This was a personal view on spine simulators and certainly not a condemnation on the therapy. Pain management doctors must have some success with the implants other than monetary gain. They sell a ton of them. I'm still in a battle with insurance on a lumbar surgery. Now they won't approve an mri on my lumbar spine until I have six weeks of rehab. Does someone elect spine surgery as a first option for back pain? I have twenty five years of medical records showing attempts at rehab with my spine. Maybe it's an age thing, or new techniques for a 67 year old lumbar spine. This just defies logic in my opinion. Thank you for the comments and the best of luck in dealing with your back pain.

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I had the same thing happen to my teeth. I switched to Butrans, the skin patch. I don’t know why the oral version is still on the market, with such a high percentage of people presenting with destroyed teeth.

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@bb03

Does anyone know anything about the intracept procedure? I have severe arthritis in lumbar with pinched nerves. RFA’s didn’t work and steroids didn’t work either and after six procedures and 7000 dollars out of pocket and yes I have insurance I’m done with expensive bandaids!

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I have read about the Intracept Procedure made by Relievant for vertebrogenic pain. I have been trying to find out more about it but hitting dead ends. Lucky you because it has only been developed for the lumbar spine. (My entire spine is fused except for T2 through T7 and those vertebrae have multiple problems but the main problem is the degenerative endplate changes called Modic Type 1 degeneration. The Intracept Procedure is similar to a radiofrequency ablation where the probe is designed to fit between the vertebrae into the intervertebral disc endplates containing nerves. The company is Relievant Medsystems, Inc. , corporate headquarters: 7201 Metro Blvd #300, Edino, MN 55439. Phone: 650-368-1000. I did find out that the pain management clinic where I have been put through multiple procedures, ESIs, nerve blocks and radiofrequency ablations with no relief, has two doctors trained in the Intracept procedure. I'm hoping I can at least talk to them about clinical trials on the thoracic spine. I hope you have good luck finding a doctor trained in this procedure with the info I have forwarded.

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@besmith57

I had a double spinal fusion in 2021. I have chronic back pain. I saw the pain intervention doctor on Friday. He told me I was not a candidate for the nerve stimulator implant because of the fusion. I'm scheduled for a steroid injection on the 15th. If it doesn't work does anyone know what my next step would be? Pain relievers don't help at all.

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What state do you live in?
Sending Prayers your way 🙏

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@gsr4863

What state do you live in?
Sending Prayers your way 🙏

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Thank you for the prayers! I live in Indiana. I'm having an MRI in October so I pray they find something that can be done.

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I had my fusion and laminectomy in 1990 after falling during an earthquake in 1988. I’ve had some degree of pain ever since and have been on T&C #3 or 4 for many years before switching to Morphine Sulphate ES tabs. When that stopped working I was switched to buprenorphine patches. I only had the one procedure and don’t intend on having anymore. I’ve never had steroid injections due to their bone destructive nature. I keep going back to PT for my HEP update as my body breaks down from OA. One day at a time?

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If the hydromorphone was helping why did the Dr stop prescribing it? It's not impossible to get opioids prescribed if the Dr sees it as a viable treatment.

In my experience, you will get little pain relief from buprenorphine. I take it to manage an addiction I developed to opioids.

Why did your Dr stop prescribing hydromorphone?

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