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Newest and best long covid recovery treatments?
Post-COVID Recovery & COVID-19 | Last Active: Sep 24 8:34am | Replies (74)Comment receiving replies
Hi everyone,
My journey started back in 2021, after having a very mild case of Covid, with multiple symptoms that really didn’t arise until about five months later, with heart issues being the most troubling. Elevated heart rate just sitting down, irregular heartbeats (pvc’s, svt’s and pac’s). Went to two different Cardiologist, heart disease and an electrophysiology. Had a stress test, echocardiograms, heart monitors, C Scans, Transesophageal procedure, even had an EP study performed, didn’t reveal anything serious (their words), just the above mentioned irregularities. I was told by both doctors that the only test left was a table tilt test but even if the results are positive there is no cure only management. So we tried a few different beta blockers, it did help the elevated heart rate but not the arrhythmias. And both told me I can take them as needed but it’s not necessary or a requirement to take them based on my test results.
Some months later I found on my own a LC Clinic here in NYC, my LC doctor performed a “simulation” of a tilt table test, meaning he had me lay down flat with a blood pressure and heart rate monitors for 10 minutes, then had me stand up and said he believes it’s Dysautonomia (POTS) he too said I can only manage the symptoms; lots of water and salt, compression garments but that’s about it. I don’t feel he was being dismissive just straight to the point. After three years I’m at the point of trying to accept what is. Of course I hope I get better but I’m also realizing that this condition/illness is unpredictable I don’t know what to expect. I try to push through the bad days and enjoy the not so bad ones.
Sending positive thoughts and prayers to all for complete recovery and happier days.
Replies to "Hi everyone, My journey started back in 2021, after having a very mild case of Covid,..."
I read Mt Sinai in nyc has a LC clinic.
I don’t know which LC center you went to, but you might want a second opinion.
I was diagnosed with POTS a month ago and Fludrocortisone hasn’t worked yet. I have a 3 mo follow-up and he mentioned if this doesn’t work, there are other meds to try.
I can’t find info on how long it takes Fludrocortisone to work. Anyone know?
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You are Like me with one of the more major symptoms of LC being heart/ circulation related. High Bp were my first obvious symptoms after Covid had gone back in April 2020, with high HR following…no ecg, echocardiogram, chest X-ray etc showed any obvious problem but I was finding it more and more difficult to walk ( having been an assiduous 10,000+ steps a day sort) or even small domestic tasks like standing brushing my teeth or cooking on a stove without pain and breathlessness. Gp had me on 5 hypertensive drugs, and that was it. I tried more self treatment: been swimming last 18 months 5x a week, and at same time intermittent fast 16 hours…no obvious difference, but surely done me some good , even if only mentally! Then I insisted on getting referred to a Falls specialist 2 hours drive away to get a tilt table test, thinking I self diagnosed with PoTS. The week before the test I had a complete collapse out cold in town, followed by dramatic vomiting. The test showed I had postural hypotension, after 8 mins BP had dropped from hyper to 60/40, and specialist insisted my high HR was due to it compensating for this drop…definitely not PoTS. But similar treatment, minus extra salt, with compression socks etc. Meanwhile my GP is also trying to do his bit putting back BP drugs the Falls expert had removed, and tampering with my hormone replacement on my 24 year old hypothyroid diagnosis ( insisting high HR is from ‘overmedicating on levothyroxine’), but that’s another story. It’s depressing how so few doctors seem to know about LC, mine admitted ‘wasn’t interested’ so presumably in Uk others just trying th3 self medicating etc using support of forums like this!