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DiscussionEB-N5 and Idiopathic PN: Long-term Usage?
Neuropathy | Last Active: Sep 25 11:37am | Replies (39)Comment receiving replies
Replies to "Tell me more about your experience with EN-N5-Thanks!!"
Hello, Betty
You might think I'd have more to report, my having been using EB-N5 for more than fourteen months, but I don't, not really – which, I suppose one might say, is good news: EB-N5 has done me no harm, or at least it appears (to me and neurologist) to have done me no harm. I have idiopathic large fiber neuropathy; no pain, but troubling balance issues. When I was first prescribed EB-N5, I was understandably concerned about my new B6 intake; I'd heard about how "too much" B6 can replicate the symptoms of neuropathy. I discussed my concern with my neurologist and all of my doctors (and at 79, I have a slew of doctors!). I read everything I could find in credible medical journals ("credible" is important!) until I'd relaxed in knowing the difference between pyridoxine hydrochloride B6 and pyridoxal phosphate B6, how the former can be toxic and the latter rarely, if ever, a problem. So, for now, I intend to continue with my EB-N5. My balance, if I'm to be honest, is no better, no worse, and a second EMG (last November) showed that my neuropathy had not progressed.
Cheers!
Ray (@ray666)