Connect
← Return to Watch and Wait Protocol?
Discussion
MAC & Bronchiectasis | Last Active: Sep 14 8:14am | Replies (33)
Comment receiving replies
Upon my diagnosis and while "waiting" for cultures and results, I formed a 10 cm cavity in my upper left lung within 30 days. The doctors that specialize in this disease and on the video from http://www.aboutntm.com suggest treating asap. Once the damage starts, its almost impossible to reverse. Once I added inhaled Arikayce, I was able to shrink the cavity to 4 cm but that's the best its gotten in 6 years...........all because of waiting.
Replies to "Upon my diagnosis and while "waiting" for cultures and results, I formed a 10 cm cavity..."
This is very helpful to know, and it definitely gives me more to think about and consider. This is all so new and bizarre to me!
I never had an option to wait, once I was diagnosed the 3×6 cavity had formed along with scar tissue. It's been the same size for 6 years.
Connect
That must have been disappointing...the forming of a 10cm cavity while waiting for culture results. Do you feel you had symptoms of Bronchiectais long before your diagnosis? My only symptom was weight loss however I did need to clear my thoart of a substance throughtout the day which I feel was/is related to hiatal hernia/acid reflux. I had my first CScan in 8/2022 (original diagnosis date) and a second in 10/2023 and apparently no cavity. Having another this October 2024 and pray all is still under control during a continuation of "watch and wait."
I feel good and energy level is fine along with a good appetite...so we shall see 'what is what' in a few weeks.
Barbara