Shingrix and peripheral neuropathy

Signed up on here for help and information. I have been doing a lot of research since diagnosis. I am a 76 year old woman, who had been very active till this hit me. Have had Idiopathic neuropathy since 1991, dr believes caused from epilepsy medication called Dilantin. It has been mild compared to many of you. Have taken B12 only. And done acupuncture. Now use a walking stick so I stand straighter as I walk, at times on uneven ground will use walker. I try to get in 3-5,000 steps a day and do mild exercise, and when weather is good work in yard. Have fallen over the years, fractured nose 4 years ago. Luckily been 7 months since I have taken a spill. Balance is concerning, when I used to walk down the street I looked like a "drunk person". Even with stick I walk a bit off side. I know a walker may be full time but fighting it!
Now diagnosed with cancer, concerned for chemo and radiation treatment how they will affect me, and will it be long term, will I lose my freedom, have to have a caretaker, go into facility. Been researching here in the PNW but not found any response yet.
Maybe someone here is going thru it. Thank you

10 days after first Shingrix vaccine, I ended up with Guillian-Barre Syndrome, could not move any extremity, hospitalized for 1 month.

Here is a suggestion. When walking on uneven ground, instead of a clunky walker, just use 2 hiking sticks. This is sometimes called Nordic Walking. I find I can hike almost anywhere by doing this. (I'm 74.)

I hope everything goes well with you! Mine hasn’t progressed much in the past couple years… feet numb, burning, tingling, etc. Some days are worse than others. I’ve also got a strange rash on the back of both ankles which no Dr says they have ever seen before (pics attached). It’s always there but some days worse than others… doesn’t hurt and I don’t see a correlation between the neuropathy severity at the time and the rash. Also, as I said, my legs (thighs) feel heavy and tired. Vascular (arterial) study was good but they have ordered a veinous study to see if that is okay. I get health care through the VA so things don’t proceed quickly. My biggest fear is it spreading up through my body. Not 100% sure this started right after the shingrax vax as memory is hazy but it seems like it’s possible based on what I can remember (for example I remember going away for my 50th b-day and definitely NOT having feet issues and then I got the vax and now here we are). I only got the J&J COVID vax once and have never had COVID.

This is the Facebook group that I follow: Shingrix severe reaction group
There are over 600+ members.

I received the 2nd Shingrex dose on February 12, 2019. I am a 62 year old male and do not have diabetes. Two nights later in bed, I experienced intense itching on my legs, feet, arms and hands. A few nights later, I experienced intense "electrical tingling" throughout my body along with nausea and lower abdominal pain. I don't know how else to describe this awful sensation. By morning, it was gone. This quickly evolved into regular daily sensations of burning feet, itching, tingling, or pin pricks of pain in these same locations. I became so alarmed that I made an appt. at the Neurological Dept at the University of Michigan. They listened to my story, did some blood tests, and gave me an MRI of my neck. Their vague diagnosis was either cervical arthritis or inflammation brought on by exercising. They offered no explanation for the leg and foot symptoms. Their recommendation is to start taking Gabapentin and get something called cervical traction from a physical therapist. I did mention to them that I had recently gotten the 2nd Shingrix dose but at that time I had not yet realized that the symptoms started only two days later and they had no reaction in any case. (We only realized this fact last night when we looked at the date of the vaccination). The only side-effect I had from the first dose was an extremely sore arm. It has been just over three months now and my feet are burning as I write this. There are symptoms every day with some days better than others but this has taken the joy out of my life.I will be seeing my PCP in two days. My greatest fear is that this may never go away and i am really just p****d off about this. I realize that it is probably impossible to prove that my symptoms are due to Shingrix but the timing is certainly suspect. I wish I had never heard of Shingrix. - Jim in Michigan

Do you have any lasting effects from having GB?