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Replies to "It sounds like you had a Gleason 7, that’s why only 6 months of hormone therapy...."
Prostate Cancer | Last Active: Sep 12 12:05pm | Replies (12)
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It sounds like you had a Gleason 7, that’s why only 6 months of hormone therapy. The reason for the two years before testosterone is you wanna make sure your PSA stays undetectable for two years before you do testosterone or it can bring your cancer right back.
There is no reason you should have metastasis in 2 to 3 years. it’s possible, but many people are cured by SBRT and hormonal therapy
Surgery would probably leave you where you couldn’t get an erection without injecting something like Trimix.
Never heard of Orgovyx shrinking the testicles, much less so quickly. Maybe you should wait until off orgovyx to see what really happens. Usually the testosterone rises quickly after stopping Orgovyx. You don’t have a long wait.
Replies to "It sounds like you had a Gleason 7, that’s why only 6 months of hormone therapy...."
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Thanks. The doctor said there's a "good chance" my T won't recover, but I'm trying to look at it, for now, as not necessarily meaning that there's NO chance. I have noticed that my testicles have gotten A LOT smaller since starting Orgovyx, and this has also been fairly painful while it's been happening, so it is a bit discouraging to me that several people have said that didn't happen to them (not that I would wish it on anyone--I hope most people on Orgovyx have a good experience).
I don't have the mental stamina to make it 2 1/2 years without any sexual satisfaction. I'll wait until the end of the year and if my T doesn't return I'm going to go to one of the online prescribers and answer "no" to the prostate cancer question and take my chances. I might try something like Clomid first, though.
My main gripe is that I wasn't informed of any of these possibilities before selecting my treatment so my informed consent was based on incomplete info. This is partly my fault for panicking and rushing into treatment. I also assumed that because I chose a Top 5 cancer center that they would totally know 100% what they're doing so there was no real need to question any of it. Oh well, water under the bridge at this point.