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@lorivwebb

I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I need a beta blocker for my heart rate. Unfortunately, after covid my beta blocker stopped working effectively and I’ve yet to find a med that helps the extreme Brady/tachy. I’m very well researched in pots though if you need any advice. I’m happy to help. Not everyone is as hard as me with stubborn symptom mgmt.

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Replies to "I’ve had pots for a very long time. Fludrocortisone helps push my pressure quickly but I..."

I had ‘postural hypotension’ diagnosed this January on a tilt test table; I thought I had self diagnosed PoTS but the Falls specialist said definitely not that heart rate went up to 135 ish as compensation as my BP plummeted from hypertensive at normal rest to 60/40 after 8 minutes standing. My GP had me on 5 hypertensive drugs, the falls expert removed two, but my GP has put me back on one…have you found a drug ( that might be available in UK) that copes with this hyper/ hypo tensive yo-yo…it’s very disabilitating and can only walk short domestic distance, or weekly with supermarket trolley ( but cannot stand at check out)?

I use Metropol. I take a 50 mg time released tab and have 25 mg one as well I use if it start to act up prior to retaking my 50 mg again. That is daily. I have SVT. (Super ventricular technic Cardia). Not sure if that was spelled correctly. I have had this since 2008. Been by ambulance to ER about 6 to 8 times. They have to restart my heart with an injection or paddles to get it back to its normal rhythm. That’s always fun. The Metropolol helps but I still get quick spells daily. I can typically stop them myself. Have they told you about holding your breath and pushing down??