Hello all,
I have two insulinomas on my pancreas and recently underwent laparoscopic surgery in NYC. While in surgery it was determined that the larger insulinoma was too deep in the head of the pancreas and within a few millimeters of the pancreatic duct so they decided not to remove anything and recommended that I undergo Radio Frequency Ablasion via Endoscopic Ultrasound. I have some concerns because my doctor told me to ignore the smaller of the two masses and they may not be able to do a needle biopsy of the larger mass before ablating it. I'm concerned because in my 30's and afraid that the mass will grow back if the whole thing isn't ablated. Also I wont have a biopsy to confirm it's not cancerous. Doctors keep telling me not to worry about things because they're so rare like having an insulinoma in the first place or having multiple ones but I seem to keep falling into these rare circumstances. Now they're telling me not to worry about it being cancerous because it's so rare.
I've decided I need a second opinion and I'm just starting the process at Mayo Clinic in Rochester. Does anyone have any experience with multiple Insulinomas and experience with Radio Frequency Ablasion?
Thanks!