Hi, @spankytwo2

I've been using EB-N5 for a little over a year. I'm unsure of the difference between -N5 and -N6, but if my experience might be of any interest, I'm happy to help.

Ray (@ray666)

@ray666 Ray, interesting update on EB-N5. The fact that the neuropathy had not progressed as of 10 months ago and balance appears to be no better and no worse, to me that seems to be an improvement since slow progression is more common. So, perhaps in your case, the EB-M5 is helping. Steady as she goes!

Ed— Just between you and me, Ed (and anyone else who might be reading this thread 🙂 ), I am concerned about possible progression, progression not due to my more recent sepsis but my PN. I've noticed I'm a bit wobblier in the early mornings and late evenings than I remember my being last winter, before sepsis. Might my ol' pal PN have been progressing all this while, under the cover of the sepsis? I have to admit it's possible. I don't like having to admit the possibility, but I'm realistic enough to know I must. As you say, Ed, "time will tell." But enough about me. How are things with you? I was remiss in not asking yesterday. Have you come through this blistering summer no worse for wear? I hope you feel top-notch … as top-notch as we PNers ever feel. 🙂 —Ray

@ray666 Ray, I imagine not having all prior activity during your struggle with sepsis, could contribute towards your progression of PN. When the neuro doc in 2016 or 2017 said to me keep moving, I took it to heart! At times, we will be sidelined, and it happens. When you can, even standing in one spot with hands inches hovering over a kitchen counter for safety could help maintain balance. Yesterday, we were out walking and a man who I never met walked up to me and asked me about the orthotics, like what did I have? I explained I have PN and drop foot. He was walking with a cane. He told me that got PN 40 years ago while in law school and now probably 70 or so. Idiopathic. He said he walks every day. His walking was slow, worse than me. His wife walks with him as does mine. I told him what the neuro doc told me years ago, keeps moving. He said that's the key. Somebody dealing with PN for 40 years gave me encouragement. We can live with this! Ed

Hi, Bob (@bobm47)
Very interesting. Of the supplements you mention, the only one I took for a time was alpha lipoic acid. Since I had no pain and ALA didn’t seem to have any effect on my balance issues, I stopped taking it. The B vitamins? I seem to be getting plenty of those. I’ll do a little checking in glutamine and carnation. I’d never had them mentioned before. Thanks for your post!
Cheers!
Ray (@ray666)

Acytle l carnation was the 3rd one. They recommended I take them during chemo but the forgot to give me the list.

I'm hoping this will subside over the weeks since ending chemo

I have taking EB-N6 for about 2 Years and it appears to help my PN not only has not progressed it appears to improve the symptoms. I will continue to take even though it is pricey. Btw I am type 2 diabetic gong on 17 years.