Disabled adult son don’t have guardianship

My son is disabled and I took him to urgent care for what doctors for two years told me were boils and they’d get better, I took him over and over until his skin on one side fell out of his side hip. They admitted him started all kinds of surgeries next thing I knew was paperwork from superior court fiduciary went to file now my son lives in group home since then he is constantly in ICU what can I do as his mother to help him I lost all rights as a parent. Help please my son’s dying every time he goes in ER it’s just worser.