Forteo side effects of fatigue and mild confusion

Posted by elaussies @elaussies, Sep 7 2:48pm

I have been taking Forteo almost a month.
I have been extremely tired. Also have experienced some confusion. Just wondering if anyone else has had the same effects and if it went away after a time?

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@windyshores

@paulta why does your endo say not to take Vitamin D? Were your levels too high?

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Yes. I didn't find them alarming at 145 but he did. He is not in favour of supplementation in general. I don't know what his reasons are but I trust him.

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@paulita

Yes. I didn't find them alarming at 145 but he did. He is not in favour of supplementation in general. I don't know what his reasons are but I trust him.

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I have been told the upper limit is 80. I keep my level around 50.

This article says over 100 is high and over 150 is toxic. So you are close to toxicity.
https://www.healthline.com/nutrition/vitamin-d-side-effects#signs-and-symptoms
Most of us need Vitamin D supplementation, especially in the age of sunscreen, and those of us in more northern areas definitely need D.

How did yours get so high? Sun plus supplement? How much per day were you taking in supplementation? Did the doctor say anything about how to get it down?

Besides excess supplementation the article lists these possible factors that make high D possible:

granulomatous disorders
congenital disorders
some lymphomas
dysregulated vitamin D metabolism

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@windyshores

I have been told the upper limit is 80. I keep my level around 50.

This article says over 100 is high and over 150 is toxic. So you are close to toxicity.
https://www.healthline.com/nutrition/vitamin-d-side-effects#signs-and-symptoms
Most of us need Vitamin D supplementation, especially in the age of sunscreen, and those of us in more northern areas definitely need D.

How did yours get so high? Sun plus supplement? How much per day were you taking in supplementation? Did the doctor say anything about how to get it down?

Besides excess supplementation the article lists these possible factors that make high D possible:

granulomatous disorders
congenital disorders
some lymphomas
dysregulated vitamin D metabolism

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Doctor says No supplements, no fortified milk and foods, wear sunblock outside. We'll test Vit D levels again at the end of winter/early spring. Vit D can be elevated in summer time.

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@paulita

Doctor says No supplements, no fortified milk and foods, wear sunblock outside. We'll test Vit D levels again at the end of winter/early spring. Vit D can be elevated in summer time.

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Vitamin D doesn't get that elevated in the summer, normally. If you haven't been taking excess supplementation (It would have to be a lot to get the level up that high) I hope your doctor looks into why your levels got so high.

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@paulita

I've been on it for 2 months and I experienced a lot of fatigue in the evenings but before I took my dose. I'm planning to have bloods done to check for too high levels of calcium. I had stopped my multi vitamin as my endo didn't want me taking Vitamin D. I've gone back to taking a multivitamin every two days and I am less tired. I don't know if I was missing some other vitamin or if I am adapting to the drug.

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My vitamin D level was at 90. My Endo told me to stop taking it for 4 months. I am not taking calcium now, only collegan. I am not certain if the dizziness & confusion I have is from the medication or high or low calcium levels (?) I am going to ask for blood testing today.
I am curious about women who have discontinued Forteo because of side effects!

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I am wondering if about women who have discontinued Forteo because of the side effects?

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I am so happy to have been offered this drug that I am going to stick out any side effects. They all seem to be passing now. I'm not a huge fan of injecting myself but it's only for 24 months. I'll be so delighted if my bone density goes up

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