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@drummergirl

I was hoping you were not going to tell me you had CMF as initial chemo. I was given this chemo and it cannot be followed up with capecitebine (Zeloda). My Orlando oncologist and the tumor board apparently did not know this. Thankfully, Mayo advised of this and suggested a different treatment plan. These rare cancers are very challenging. Hope you are researching and asking for second opinions before you reject the Zeloda. Sending you good wishes.

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Replies to "I was hoping you were not going to tell me you had CMF as initial chemo...."

Have you taken capecitebine? I am wondering how bad the side effects are. I read in the info I was given that they can be worse in older people. I am 78, and my oncologist said that capecitebine might help, but he had no research to confirm this. I hate to give up what may be my short time left to side effects that will keep me out of life as my chemo did, especially if capecitebine will be no help.