Connect
← Return to Watch and Wait Protocol?
Discussion
Comment receiving replies
Yes, I am doing the watch and wait. I was diagnosed 3 years ago at age 64. Found on a CT that was performed for another matter, no symptoms. MAC found through bronchoscopy because I was not producing sputum. The pulmonologist that diagnosed me wanted me to start right away. I refused, went to NJH a year later. They agreed with the watching and waiting. I know that if things get bad enough I may have to do the treatment. Meanwhile, I try to do things to stay healthy and nebulize with 7% saline to get out mucus and make it less hospitable for the nasty bugs.
Replies to "Yes, I am doing the watch and wait. I was diagnosed 3 years ago at age..."
Watching and waiting for 13 years...it's do-able. And while my NJH doctor would rather I have part of my left lung removed, he's willing to listen to what I know about my body - mainly that two trials of the Big 3 left me a mess and unwilling to take them (I do understand that some folks have great success with those drugs. I just wasn't one of them). And I agree, do the healthy things, nebulize, exercise, and eat a healthful diet.
Connect
Thank you so much for sharing your experience! Our situations sound very similar. It's encouraging to know that others are doing this, too. I wish you all the best!