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Polymyalgia Rheumatica (PMR) | Last Active: Sep 11 11:57am | Replies (6)
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Replies to "My anti inflammatory diet and supplements are largely patterned on IL-6 reduction. Turmeric, melatonin, stevia, Vitamin..."
Thank you for sharing your "tips." Hope you are on the way to complete healing and remission. The rheums I've met have been such a disappointment. One trick ponies. If you have osteoporosis, you take the medication. NO other route will be discussed. Same with PMR. Steroids. They run only the ESR and CRP. I had to scare my rheum into testing for other muscular issues by suggesting I may have rhabdo since I take a statin. She was a very kind woman and the best one I had found, but of course, she left medicine entirely and has a desk job now. What a pity. She was not at all functional or natural in her approach but she'd at least respond to my concerns and do the safe thing. Since I have osteoporosis, she said if I had PMR and took steroids, they'd have to do a reclast infusion first because, of course, steroids eat bones. I froze. She said, "You can't imagine how many patients are on both." Wow. The guy who threw the IL and cytokine lab results in my face in a fit of rage suggested I see a PT. When I asked for a recc, he said "No. I have no one to suggest." I will NEVER be in his presence again. He was taking up the slack from the rheum who left and was in no mood to be decent. I made sure the office knew it. I just felt I had to.