Coping with fatigue: What are your coping tips?

Posted by ele @ele, Jul 10 3:11pm

Does anyone have suggestions for coping with fatigue related to ibrance and anastrosle treatment for metastatic breast cancer

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

@cris2

My husband has been done with treatments for four months and still has no energy some days, or he might do some yard work and have to rest more. I heard some people say fatigue could last a year or more. This might be the new normal he thinks.

Jump to this post

Four months may be too soon to accept as the new normal. The body takes time to rebuild and adjust to the assault of treatments. As @isadora2021 mentioned, 6 months might be needed.
For me, at 70 yo, all the time sitting and being out of a regular physical routine means I lost muscle mass and strength. I think it only takes 3 days of bed rest to start the muscle loss.
Wishing your husband the best in his recovery! Hoping the fatigue lessens soon. Take care of yourself!

REPLY
@thieschafer

I am taking Tabrecta and have a lot of fatigue everyday. Two weeks ago they reduced the dosage and said that would help in a few weeks. Anyone have experience with this?

Jump to this post

Tabrecta has caused me mainly fatigue & swelling. I also have arthritis pain & fibromyalgia & I think the tabrecta makes it worse. The Dr. will not reduce my dosage. I have started using Air Compression boots for circulation & this does help the swelling. Do you also have mucinous adenocarcinoma? They told me it looks like pneumonia on x-ray & said it was rare. The Dr. said it had been in my lungs for two to six years. They had been treating me for bronchitis & pneumonia before they took a biopsy (wedge) & decided it was lung cancer.

REPLY
@joycegray1940

Tabrecta has caused me mainly fatigue & swelling. I also have arthritis pain & fibromyalgia & I think the tabrecta makes it worse. The Dr. will not reduce my dosage. I have started using Air Compression boots for circulation & this does help the swelling. Do you also have mucinous adenocarcinoma? They told me it looks like pneumonia on x-ray & said it was rare. The Dr. said it had been in my lungs for two to six years. They had been treating me for bronchitis & pneumonia before they took a biopsy (wedge) & decided it was lung cancer.

Jump to this post

I have adenocarcinoma (not mucinous). Sounds like you are dealing with a lot of issues all at once. Hang in there.

REPLY

I have been surprised at the fatigue I am experiencing after radiation. Also I have no appetite at all. I try to eat but I can't get down much. Always some nausea threatening. This is the third time I'm having radiation and it has never been as bad as this. I see you recommend movement, and I'll try that but I feel too energyless to move around.

REPLY

I’m going on my 6th chemo round and intense fatigue is a regular side effect now. Very difficult for me cause I’ve always been extremely active- always on the move doing something or other, and resting only when I’m tired out. It bothers me that I can’t do that now. One thing that helps is staying busy doing smaller things that are still useful and bring a sense of accomplishment but don’t wipe me out. I can’t stand going through a day watching tv and having nothing to show in terms of accomplishments. I guess I’m just hardwired to be this way. I think a key to surviving cancer is being adaptable to the changing circumstances of my life, and finding other ways to feel purposeful.

REPLY
@rselicmeister

I’m going on my 6th chemo round and intense fatigue is a regular side effect now. Very difficult for me cause I’ve always been extremely active- always on the move doing something or other, and resting only when I’m tired out. It bothers me that I can’t do that now. One thing that helps is staying busy doing smaller things that are still useful and bring a sense of accomplishment but don’t wipe me out. I can’t stand going through a day watching tv and having nothing to show in terms of accomplishments. I guess I’m just hardwired to be this way. I think a key to surviving cancer is being adaptable to the changing circumstances of my life, and finding other ways to feel purposeful.

Jump to this post

Hi
You have described my fatigue. It's very frustrating and
hard to accept that this is my new normal. I simply do not have the energy to be the active person I was.
Resting doesn't restore the energy so that is pretty discouraging. But I can't sit in a chair for the rest of my life. So doing small activities and taking time outs is how I cope
It is life changing
ELE

REPLY

I agree living with chemo and whatever else comes our way in terms of treatment and it’s effects on our bodies is indeed life changing, but it’s also life saving so if we want to remain alive we endure it. I admit I push myself to do what I can even when I don’t want to. But if I think creatively, there are things that I can do. For example, I can’t metal detect for relics as much as I used to, but I can work on restoring the things I’ve already found, and displaying them. Also, I’m thinking of buying a decent keyboard so I can try to play along to music that I enjoy listening to. Both are activities, but ones I can do even with my present limitations. I’ve thought about doing a puzzle, maybe I will. I’m still working at my job, at reduced hours, and that tires me out tremendously, but it’s worth it. I’m old enough to retire, but that would be financially difficult, and my only life insurance is through my job, and I need the health insurance for myself as well as my wife, so I’m working until the bitter end I suppose.
Best of luck, Bob

REPLY
@rselicmeister

I’m going on my 6th chemo round and intense fatigue is a regular side effect now. Very difficult for me cause I’ve always been extremely active- always on the move doing something or other, and resting only when I’m tired out. It bothers me that I can’t do that now. One thing that helps is staying busy doing smaller things that are still useful and bring a sense of accomplishment but don’t wipe me out. I can’t stand going through a day watching tv and having nothing to show in terms of accomplishments. I guess I’m just hardwired to be this way. I think a key to surviving cancer is being adaptable to the changing circumstances of my life, and finding other ways to feel purposeful.

Jump to this post

Try acupuncture to improve energy levels. There are also some foods that have been known to help, such as soups made with organic beef or bone broth or a rich chicken soup (not the kind out of a can) but the real stuff that is simmered for a long time. Be active within your abilities. Walks are wonderful for exercising without any negative effects.
Also, make sure you are not hard on yourself by comparing what you were able to do before treatment with what you can do now. You will recover your energy level but expect it to take time.

REPLY

I'm certainly in the group, It's not the same anymore. I fully understand if I was not getting treatment, I might not be here. I'm 18 months into treatment and the fatigue is the worse. I still work 40 hours on my feet and it's hard. Soon I'll be 70 and will be retiring end of the year. I do take pleasure in getting the small stuff done, it makes me feel good. I had 10 rounds of chemo, now on Firmagon, Abiraterone, and Presnidone. It's good people offer advice on how to fight the fatigue, I've not found that magic yet, maybe down the road. It's not a gradual thing throughout the day, I wake up with it and go to bed same. It's a very easy choice to make, take the treatment. I have been comparing my weekends to retirement, take care of business, rest when I need it, move when I want to. I do think it will get better to start the new year. Best to all.

REPLY

My husband is also dealing with fatigue - during chemo and now immunotherapy . I will try all suggestions and happy to read more. Thx

REPLY
Please sign in or register to post a reply.