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Why did you have a lobectomy? Were you told you'd be cured?
ok all, now that I think on this and see how many of you have had this surgery and then went on to chemo, etc. I am thinking. Were all of you told also that it was only in your lung and you'd be cured?!! They did a biopsy of my lymph nodes the month before and they were clear, then the lung biopsy which showed cancer. I was told I would be cured since it wasn't in my lymph nodes. Otherwise I wouldn't have done this. But then of course the nodes they took out during the lobectomy showed it had spread to them. How common is this that we are told it's only in lung and can be cured? Anyone else have this same scenario w/ biopsy of nodes first thinking you'd be 'cured'??? can't stop thinking now why so many of us had a lobectomey.....thank as usual!! learning and making decisions from you guys! julie
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You have the right attitude and I should try harder to do the same
It would be wonderful if we can say we’re cured but alas I know it’s better to say that everything is quiet now
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2 ReactionsI also wanted to say that I have numerous nodules in both lungs and always pray that they stay stable, one of the nodules in my LRL has some concerning aspects but it remains sleepy, it was referred to as an “indolent nodule “ and the research says that these are nodules that display features of a malignant nodule but many people have lived a lifetime without it needing to be removed.
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1 ReactionI had an "aborted" lobectomy. The surgeon ended up only taking a wedge and four lymph nodes as the actual nodule had too much scar tissue that was too close to the pulmonary artery and they didn't want to compromise the heart. Prior I was on adjuvant chemo & immuno (which probably accounts for all the scar tissue) and then the planned surgery was to "cure" me. Well, now that I've had chemotherapy along with immunotherapy and surgery, am obviously not 'cured', but the next step will be radiation and chemo combined. Apparently, one plus one will equal three. All biopsies came out negative but the Drs don't want to just monitor this but treat it now. I'm just beside myself.
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4 ReactionsPonytail, were you by any chance a member of the WWII Indianapolis Roundtable? I wish you luck on your journey. I have PMR and doing OK so far.
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1 ReactionJohn, no I've never been a member of the Roundtable. The best to you.
I too had an unsuccessful resection to remove a bleb/cavity due to scar tissue. 4 days of CICU, pain, etc. Now another (certainly better) surgeon wants preform a lobectomy. I said no for now.
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2 ReactionsHi @ponytail, welcome to the Lung Cancer discussion. This disease is complicated, and thankfully we have a variety of treatments now too. I'm glad that you are getting the treatment that you need.
You mentioned that your biopsies were negative for cancer. Did the tissue from your wedge and/or lymph nodes confirm cancer?
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1 ReactionI was diagnosed with NSCLC back in February, stage II. Treatment plan was neoadjuvant chemo & immunotherapy, then a lobectomy. As mentioned, the surgery was unsuccessful due to scarring, but the Dr did take 4 lymph nodes as well as a wedge of the tumor. All came back from pathology negative for cancer. But still they're proposing radiation along with chemo again, which is how they would treat inoperable cancer...even though labs were all negative now.
They never did a biopsy on me straight to surgery and staged me at 3b. Now I'm told it's rare to have surgery at 3b and there's no info bc no trials have been done on this.. so I get absolutely no info from any doctors and I had surgery last October.