← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@kellysmail2016

I read your story and yours is a lot like mine. I’m still playing the testing game but we all know I have an immune disorder but not sure which one. Sjogren's lung (pulmonary) disease would be one I would look into. The symptoms I have match the Sjogren's but I also have issues breathing still after three plus years. I will request a Rheumatologist referral. They ruled that out but I think that was still suggested to go see. I too have intense Disabilitating muscle and joint pain. Brain fog, and nerve pain all over. Getting treated for Fibromyalgia. Though there is more to it. My Dr is just treating symptoms. More tests being done. They have mentioned Cushings as well. Going to a Medical School Hospital and seeing the head Endocrinologist referred by my Cardiologist. I can barely walk now. Limited.

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Replies to "I read your story and yours is a lot like mine. I’m still playing the testing..."

Oh good lord! I’m so sorry you’re suffering so. You mentioned you’re seeing an Endocrinologist, please have them test your Thyroid levels. You could either have hypothyroidism or hyperthyroidism or Hashimoto’s. I have hypothyroidism with Hashimoto’s (autoimmune) disease and am being treated with Synthroid. I had brain fog and began gaining weight rapidly. It could make a big difference in your body if you have either of these and are not being treated. Good luck!