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@tsc

Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an appointment soon.

I have GCA, and starting at 40 mg because I'm small, my taper has been -5 mg of prednisone every two weeks. I was off it for a year, but relapsed, and this last go round I did feel jumpy and trembly on prednisone at the higher dosage, which I don't recall from my first episode of GCA.

Did your husband recover any of his vision? Blindness is one of the most devastating consequences of GCA. I'm so sorry.

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Replies to "Hi @jojobarrk, I think it's good that you notified the doctor. I hope you get an..."

Unfortunately his vision loss is permanent. We both caught a bad flu last February and he took longer to recover than I. His aches and pains we put down to the lingering after effects of the flu and did not realize something worse was going on. We came home from doing groceries and as he was walking to kitchen he went blind instantly. He said it was like someone pulled down the blinds for both eyes. He sees slight shadows out of the bottom of his left eye. Scary. Thank you and I wish you good health