Dr at University of VA called last Wednesday and said my MRI showed the lesion on brain were clearing of and to start tampering down to 20 mg on my steroids. Was going to redo MRI in Oct and get a plan of action.
Then they called Thursday and said they didn’t see that they also did an MRI of area C and T of Ky spine. That MRI showed a lot of inflammation and with the amount of steroids I’ve been on, that’s extremely odd.
So now I’m not tampering down and they have a scheduled a MRI of my lumbar section. We are also still waiting on my lung biopsy results from late July. The lung Dr sent it to John Hoskins for a second opinion.
So back to the wait and see pattern. But in the meantime my body feels like it on the cusp of going to sleep, tingling and numb head to toes. I keep reminding myself that this is all in Gods plan and timing for me, but I’m also human and want answers.