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Myelomalacia: Let's connect

Spine Health | Last Active: Sep 14 10:01pm | Replies (62)

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@jenniferhunter

@dacraig Welcome to Connect. I am presuming that at this stage, you have not had surgery, but may be considering it. When a radiologist issues a report on imaging, they often will list a lot of possible diagnoses that need to be confirmed by a clinical exam. Surgeons can have a differing opinion. Did your surgeon show you the imaging and explain it to you?

Myelomalacia can show up as a white mottled fuzzy looking area within the spinal cord where there is compression and typically represents the loss of nerves that have died. In your case, you need to get the diagnosis from your specialist's opinion. Myelopathy represents spinal cord dysfunction, but not necessarily permanent damage. Surgeons may also be watching for changes over time before offering surgery. At some point, you need to decide if you want surgery. An onion from another surgeon may be different, and you may get an offer for surgery sooner. Generally speaking, it's best to decompress before permanent damage occurs, but even surgeons can't tell you exactly when that happens on your timeline of your spine condition. If you already have permanent damage, they may hesitate since they can't improve that function.

I am a cervical spine surgery patient, and my surgery was done before any permanent damage happened. I had good results and spine surgery resolved all the spine generated pain. Sometimes surgeons may decline to help if they don't think you will improve, for example, if there already is some permanent damage that will leave lasting symptoms, weakness or another condition that can produce overlapping pain symptoms, and they may think a patient will blame that result on them. They should tell you that surgery will help prevent a spine condition from worsening, and not necessarily promise improvement or pain reduction as a result. There are a lot of variables, and all patients are different.

This link has some images of Myelomalacia showing the white mottling or streaked areas.
https://radiopaedia.org/cases/compressive-myelomalacia-snake-eyes-appearance?lang=us
Do you have an appointment for follow up? You might ask questions on your hospital portal. Are you considering a second opinion elsewhere?

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Replies to "@dacraig Welcome to Connect. I am presuming that at this stage, you have not had surgery,..."

I had a 3 level fusion C-3 thru C-5 in 2005. I had an injury to the neck from a fall from horse. The surgery solved all my problems. My recent symptoms started app 1 1/2 years ago.
The neurosurgeon who did the surgery is retired, but a neurosurgeon now from the same department is pretty adamant that the MRI has not changed enough ( there are obviously degenerative changes) that explains the symptoms I am having now. Neurologists disagree. The MRI that was done 4/2024 shows malacia at c -4. I have never had that in the MRI reports in the past.