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Trembling and shaking, no energy - PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 28 9:43am | Replies (7)Comment receiving replies
Hello Joanne @jojobarrk, Welcome to Connect. I know it must be difficult for you trying to help your husband navigate the side effects as well as the symptoms of PMR. PMR doesn't usually effect the eyes but there is another condition that sometimes comes with PMR called Giant Cell Arteritis that can have devasting effects on the eyes and vision if not treated quickly. Mayo Clinic has more information on GCA here - https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758.
We added a little to your discussion title to hopefully help members with some experience join the discussion.
Since he was just diagnosed in May it seems rather quick to be down to 20 mg prednisone from 55 mg. You might want to scan though the discussions on PMR, GCA and fatigue to learn what others have shared. Here's a link that shows discussions and comments - https://connect.mayoclinic.org/search/?search=PMR+and+GCA+%2Bfatigue.
@tsc @dadcue and others may also have some suggestions for you. Was your husband seen by a rheumatologist? Did they mention GCA?
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The Rheumatologist performed a biopsy on his temporal artery and confirmed GCA. He was on IV prednisone while in the hospital. When we met with doctor after release from hospital the doctor said he had PMR. My husband has fusion of his thoracic vertebrae. The doctor prescribed an 18 month course of prednisone. He seemed to do well first few months but I have noticed a change in his condition plus bizarre discolouration on some of the veins near where biopsy was performed. I put a call into doctor’s office to advance follow up appointment set for late September as something is not right. Thank you for your reply.