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Unexplained Sensations and muscle twitching

Brain & Nervous System | Last Active: Sep 21 11:01am | Replies (48)

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@gailloc

Almost all of your symptoms sound very much like mine. I have been diagnosed with Fibromyalgia. I’m not always convinced that is what it is, nobody has ever really found much wrong with any of my tests. I was on gabapentin and then Lyrica and was forced to stop taking because of memory and cognitive decline. My twitching has considerably slow after stopping the medication, there were times my phone would fly out of my hand. There are many days of frustration and often Dr’s look like they want to “run” when they see you coming. It is hard for family and friends to understand and believe you. There are many interesting books on the subject and the Mayo has an excellent Fybro clinic. Best of luck with your diagnosis, please consider checking into fibromyalgia, it’s tough to get a diagnosis but it’s a start.

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Replies to "Almost all of your symptoms sound very much like mine. I have been diagnosed with Fibromyalgia...."

I have had Fibromyalgia 23 yrs. It was diagnosed by process of excluding other illnesses, as u said. It was caused by a hard fall and neck surgery nerve damage pain. Lots of family stress also. My blood wk was all normal, but I had pulsing burning pain in bk of neck, upper spine and body aches all over, 24/7 for far more than three mos. I went to a Rheumatologist who diagnosed it. In Fibro, the Central Nervous System wh is the brain and spinal cord, crank out pain signals to the whole body. Getting sleep is so hard. It’s really an evil disease with no cure. But I have studied it from every angle by listening to Dr Ginevra Lipton on YouTube who herself has Fibro. Her teachings to greatly lower Simple carbs (Google examples), omit desserts, candy, chocolate, sweet juices (all sugary stuff and white carbs fire up pain), fermented foods,food additives and preservatives, dyes, omit spicy foods, and certainly msg (monosodium glutamate), and yeast extract, has hugely helped reduce pain. Also omit beef bc it’s very difficult to digest. It’s got stuck in my brother’s colon and he ended up having to have a lot of his colon removed and a colostomy bag instead. Two days later he aspirated into his lung in his sleep and died. With Fibro food moves a lot more slowly thru the intestines so nuts, seeds, fiber veggies and fiber fruits are the perfect diet for ppl with Fibro. Omit alcohol bc it also slows the intestines. I sprinkle a little Yerbe Prima Prebiotic Fiber on my food every other day.and drink a lot of water.
For pain relief do bath soaks in Epsom’s salt before bedtime. See ur Dr about getting a medical cannabis permit card. Take high done CBD am and pm. If u can’t afford the fees required for a Cannabis card, but some Hemp CBD which is legal in ev state. CBD does not cause a high. It’s relaxing and calming. For sleep, check out two supplements - Sleep Thru and Back to Sleep by Gaia Herbs. I hope this info will be a help.