Replies to @helen1000 one of my kids had an ANA of 1:160 and it is not considered significant….

← Return to ANA 1:160 - is it an auto immune disease?

Discussion

ANA 1:160 - is it an auto immune disease?

Autoimmune Diseases | Last Active: Sep 28 6:50am | Replies (51)

Comment receiving replies

@windyshores

@helen1000 one of my kids had an ANA of 1:160 and it is not considered significant. Even my once very high ANA of 1:5120 didn't prove any particular disorder, or any disorder at all. But you have symptoms. Most rheumatologists are cautious about labeling disorders without the right combo of testing and symptoms.

I have very high antibodies for scleroderma (and a long time diagnosis of lupus). I don't have symptoms of scleroderma though so the doc is just seeing me twice a year. I think it will go to once/year. The very high antibodies aren't relevant until the disorder is clearly active.

My other daughter does have a lupus diagnosis: combo of blood tests, Raynaud's, mouth sores, joint pain, sun sensitivity etc. etc. She avoided rheumatology for years because she cannot take steroids or Plaquenil so what is the point? Well the point is to assess internal damage at least annually.

If you have an ANA of 1:160 with symptoms, you might benefit from a referral to pain management. That is what we pursue. PT's don't often understand inflammatory conditions so choose carefully if you go that route. I just do manual PT (massage). PRP has helped my daughter's joint issues.

Jump to this post

Replies to "@helen1000 one of my kids had an ANA of 1:160 and it is not considered significant...."

helen1000 | @helen1000 | Sep 9 6:12am

Dear Windyshores,

Sorry to know that you have the diagnosis of lupus and your kid has the same diagnosis. It must be very frustrated at the beginning. I understand this feeling now. I was diagnosed as MAC lung infection two years ago. It is a long term respiratory disease and usually people get sick when they are in 60s or 70s. I am in my 40s and I feel very very frustrated about it. My doctor does not understand why I have it at this age so he wants to dig out whether I have any auto immune disease. I try to live with it and still keep positive. But I also feel frustrated because I have been trying my best to keep myself fit and spent a lot of time on health since young. But I still got MAC!

Thanks so much for your detailed reply. Yes your hit the point - symptoms count more. I have long-term fatigue since childhood. But I also have gluten intolerance so I believe part of the reason is from gluten I have been taking before I was aware of it. After I removed it from my diet, my fatigue is much less.

Other than that, I don't have any other symptoms. I was born premature so I guess my long term fatigue also from the premature new born related severe bacteria infection and the strong antibiotics I took before I was three year old. I am not from medical field, so I just self diagnose myself.

Yes I should follow up with a rheumatologist about that. Shall I see any other doctor with any specialty, you think?