Anyone ever had face and limb sensory symptoms?

Posted by sb4ca @sb4ca, Aug 26 10:01pm

I have a confirmed dx'd of CIDP (neuromuscular disorder) for about 8 years. It affects my large motor nerves. I've never had sensory symptoms until the last couple months. What's most alarming about it is that it's affecting my face primarily while sleeping. I've had my ear "fall to sleep" and last night work up with my arms and lips with pins and needles. It affects my legs and arms and face. I just happened to have my annual appt with the neurologist today. This guy is so stoic that you never get a rise out of him. He didn't make any type of comments on what could cause it. Just said let's do the nerve conduction studies and do a brain MRI. So now I'm curious if anyone else has had this type of thing. I've had a big unintentional weight loss from malabsorption so I thought maybe that could be a cause, but nothing shows up on Pubmed or the like. Appreciate any feedback.

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katcollins | @katcollins | Sep 7 9:32pm

In reply to @shelleyw "katcollins, What type of dr. did you see for this disorder? ShelleyW" + (show)

I see a neuro restoration specialist in Cleveland clinic. I have also seen a movement disorder specialist.

slkanowitz | @slkanowitz | Sep 8 5:16pm

I too have CIDP and frequently get random paresthesias (abnormal sensations) in other parts of my body, including face.
I think it’s common. Your neurologist could have, should have, given you some reassurance even if he wanted to do further tests. It’s curious you have malabsorption, as do I ( pancreatic insufficiency). Do you know what kind of malabsorption you have? I don’t know of a connection with CIDP, but since both are uncommon, who knows?