← Return to Endometrial Clear Cell Cancer: Looking for survivor stories and info

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@ejohn

Hi Helen and all, I forgot to say I was mixed endometrial, I call it regular and clear cell, it was also in one lymph node. Very grateful to be at this place over 3 years after treatment. Also on a positive note, I was received the diagnosis on Friday at 8pm of Labor day weekend. I realized last monday I didn't even think of it at all that weekend! I am due for a follow up 6 months from my last with exam, blood work and CT scan. I had to talk them into 6 months, they were trying to move me to a year. Very frustrating that something so high risk would be just moved further apart. very much determined by insurance. I have not found any uterine clear cell specialists so that makes it harder. I got another post treatment opinion from a lovely doctor who is a breast specialist. She said I had a 20% risk of breast cancer and should be scanned 2x a year. That makes no sense to have breast scans more often than for clear cell. Very frustrating.

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Replies to "Hi Helen and all, I forgot to say I was mixed endometrial, I call it regular..."

@ejohn Three years out from diagnosis is wonderful. Like you I wouldn't want to be seen annually only three years out from a mixed endometrial (regular and clear cell) uterine cancer. I wonder if insurance will pay for 2 mammograms each year even with the risk your breast cancer physician talked with you about. This makes no sense. It's a good question to ask your gyn-oncologist.

My initial diagnosis came to me late on a Friday afternoon during the last week in July of 2019. Like you I had to "sit" with it all weekend until I could see my doctor again. My doctor called me so at least I didn't see the diagnosis on a portal.