I have no experience with any of the facilities that people have mentioned, but I do have experience with medical travel. Years ago, we took our son, whom we adopted internationally, to NYC and Philadelphia for orthopedic care. We flew to NYC; our trips to Philly varied--sometimes driving, sometimes flying (very expensive for us given our location), sometimes flying to a slightly distant airport and renting a car and driving the last 100 miles. What I wanted to mention is that medical travel is very expensive, logistically cumbersome and tiring. Emphasis on the very! So as you consider where to go, take some time to figure out expenses.

You'll need transportation (gasoline or airline tix), food, hotel, incidentals. What will transportation cost? Go online and guesstimate the airfare charges. During some of our son's treatments, we commuted weekly. When we went to NYC, we had to cough up $800 in airline tix weekly, and that didn't count taxis and food. Phllly was worse; I remember one trip costing us $3,000 (round-trip CLT to PHL on a weekday with a short booking time). It was cheaper to fly into BWI and rent a car, although it increased the logistical complexity. Also think about the logistics and fatigue factor. For example, will your husband need a wheelchair? I slung a lot of wheelchairs on our trips, and as I can attest, that complicates things, from finding a taxi to boarding the airplane to getting into restaurants. How long would you need to stay in the distant location, and what would that mean re hotel costs? Is there a low-cost patient residence you can use? (We were able to use Ronald McDonald House a couple of times, but he was a kid, of course.) Finally, check with your tax preparer re deductions. I haven't done medical travel in years, and I am not a tax expert, so don't take this as solid info. Plus the tax code may have changed. Anyway, in our case, we got very little in deductions due to limitations in the tax code. I recall we could deduct only the dollar amount that was above 7.5 percent of our AGI. So that first 7.5 percent was unreimbursed.

I don't mention these concerns to discourage you or tell you no. We bent over backward to get our son the treatment he needed and would do it again, and I know you're in the same situation. But I want to encourage you to plan ahead so you're prepared. Good luck!