Need hope: Neuropathy from chemo

Posted by needshope78 @needshope78, Apr 24, 2020

Is there anyone going through neuropathy from chemo. If so how long until my mother will be able to walk again afterwards. It’s been 8 weeks every week gets worse

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I want to follow the responses that are posted here. My sister developed terrible neuropathy in both feet when she was on drugs for a clinical trial. This week she is giving up her car because she can no longer feel the accelerator /brake pedal. She saw a neurologist last week who spoke to her about massage. Any other ideas out there???

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I have been walking outside exclusively wearing some sandals from the comfortview line of footwear from women's world (a provider of clothing for larger-sized women, which no longer applies to me since I've lost at least 70 pounds between tumor and chemotherapy). I'm finding that very predictably, I hit a spot in my regular walking routs (a bit hilly) where the left "shoe" becomes loose; somewhat later at another fairly predictable spot the right one will then become loose. I have been told I have "chemo feet" and/or "venous insufficiency" following a course of Gemcitabine-Abraxane chemo. Whatever.
My own idea about what is happening is that the swelling remaining post chemo is being reduced by exercise.
The inner soles of these shoes/sandals have a nobby surface that the sole of the foot comes in contact with. Some people with normal sensation find them too uncomfortable to wear.
For me it seems that my feet are gradually "waking up" and beginning to experience some normal sensory function.
You may just be able to see what the vendor describes as "faux suede massaging padded insoles" in the attached image.
Hope this gives you some ideas!

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@cindysj

I want to follow the responses that are posted here. My sister developed terrible neuropathy in both feet when she was on drugs for a clinical trial. This week she is giving up her car because she can no longer feel the accelerator /brake pedal. She saw a neurologist last week who spoke to her about massage. Any other ideas out there???

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Often there are two separate issues. One is swelling, Which can be addressed by taking 95% curcuminoids with black pepper extract supplements.
The second is to stimulate and increase blood flow to keep tissues and nerves functional. Vibration therapy has been shown to be effective.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6501973/
https://www.mdpi.com/2077-0383/11/7/1862

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I have neuropathy in my hands and feet from chemo treatments I have not tried it but a nurse practitioner suggested trying acupuncture.
In my case the neuropathy got worse after the treatment ended but very slowly subsided to a manageable level.
Good luck

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I also have the neuropathy in both hands and feet. It started in just my feet with the chemo and now I'm on immunotherapy (Imfinzi) so it has gotten worse in my feet (but still manageable) but has now reached my hands - THIS is very annoying in that I cannot feel my fingertips and it's very difficult to open jars, etc. My Oncologist has suggested BComplex vitamin so I have started on that. I also use a cream on my hands and feet at night (wear socks and gloves). It's called Magnilife Pain Relieving Foot Cream and it does help. I've also tried Vicks on both hands and feet and it did help somewhat. I'll be curious to see if when the immunotherapy is finished if it subsides to a more manageable level. If there's a magic bullit out there, I would take it. I also agree that vibration therapy can help...lots of good suggestions here.
Good luck NeedHope...I hope that something works for you.

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@jldavis823

In my case my neuropathy was in both hands and feet and did not lessen after treatment was over. About a year after the end of Chemo I found a study by the Cleveland clinic that showed promise using supplements. I’ve been taking them faithfully since, with great effect. The pain started to lessen within days. I’m not neuropathy free even after a year, but the pain is almost gone. I’m still left with some numbness but the difference is remarkable. I can’t find the link to the study anymore, but I posted the following on the Mayo neuropathy board a few months ago. “ There is no medication for neuropathy but there are numerous studies using supplements. I read one from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone.”

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Thank you. I will definitely give the co q 10 a try and see if I can get some pqq

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@bluebutterfly1972

Thank you. I will definitely give the co q 10 a try and see if I can get some pqq

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I get pqq at Amazon

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@cindysj

I want to follow the responses that are posted here. My sister developed terrible neuropathy in both feet when she was on drugs for a clinical trial. This week she is giving up her car because she can no longer feel the accelerator /brake pedal. She saw a neurologist last week who spoke to her about massage. Any other ideas out there???

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I have neuropathy in my feet and had to give up driving after chemo for breast cancer. It's really scary not being able to feel the brake. It seems to be a fact of life now and I take gabapentin which helps the numbness. I use a Voxxlife Liberty patch that has helped me with my balance.

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@raebaby

I have neuropathy in my feet and had to give up driving after chemo for breast cancer. It's really scary not being able to feel the brake. It seems to be a fact of life now and I take gabapentin which helps the numbness. I use a Voxxlife Liberty patch that has helped me with my balance.

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Acupuncture has been known to help with the various symptoms emerging from cancer treatment. If you decide on this please seek a very experienced Chinese medicine practitioner, not just anyone with a shingle posted outside their door.

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It is probably hard to find one in my little town.

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