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@jdsguam

I'm a 69 yr old and for 8 years now, I'm being treated for permanent AFIB and Heart Failure. Last week, I'm told I have a 4.5cm TAA, following a CT Scan. I live on the very Remote Tiny Island of Guam. There are no Heart Surgeons on island. I was doing pretty good with my other issues; but, this TAA has really taken a toll on my mental health. I try to brisk walk up to an hour, 3 times a week, I take my meds and watch my diet, etc; but, I can't get this "ticking time bomb" or "Hour Glass Running Out" image out of my head. I feel like I walking around with a fragile water balloon in my chest that could rupture at any time. If something were to happen, there is no surgical team on standby. I would have to be stabilized somehow, and eventually flown off-island to Hawaii (about 8 hrs away). Seems highly unlikely.

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Replies to "I'm a 69 yr old and for 8 years now, I'm being treated for permanent AFIB..."

Oh, dear. This is concerning. No wonder you're feeling anxious. Is there any way you could get to Hawaii to get checked out? So long as you can get CT scans where you are, you can be monitored. Maybe you could contact a surgeon in Hawaii and establish some sort of relationship before actually going there. You could get your test results sent to the surgeon, who might be able to give you more information and some idea of what you should do. Good luck to you. As I understand it, 4.5 is below the threshold for surgery.

I totally relate to your feeling like a ticking time bomb and like a water balloon( I’ve actually used that analogy) ready to burst inside my chest. I just got my second opinion cardiologist visit today and he said to just go live my life but don’t let my heart rate get above 113 or my blood pressure above 120/80. He also said no heavy exercise and no amusement park rides, etc. but traveling is fine as long as I don’t try to lift heavy baggage. I find it fascinating that he had a whole list of dues and don’ts when my first cardiologist said no limitations and then when I push further said well don’t lift anything over 40 pounds. They are both bored certified with many years experience and highly rated. It’s amazing how different cardiologist can have two different responses. I thought I would feel better after seeing this doctor but now I’m anxious just waiting for the six month mark to have it rechecked. I guess if it doesn’t grow then I can rest a little bit easier, but I feel like the goalpost moves and the ticking time bomb is for real. hang in there. At least we do have a support group here that’s extremely helpful.