← Return to Struggling to find answers.

Discussion

Struggling to find answers.

Autoimmune Diseases | Last Active: Sep 9 7:27am | Replies (15)

Comment receiving replies
@dlydailyhope

@erivas110818
I am so sorry to hear all of what you are dealing with at such a young age.

It may be good to get an updated MRI of your brain and even your cervical spine due to some of your symptoms.

Your neurologist can also send you for a swallow test to see if there is a neurological reason for your swallowing issues. I had a similar problem (couldn’t swallow spit/liquids without choking). Mine ended up being due to cervical myelopathy where my spinal cord was being compressed/injured by my disc bulge/bone spurs plus they found a large thyroid nodule (~2.5 cm) on my right lobe. I had surgery for both and swallowing and many other symptoms improved (daily headaches, neck/shoulder pain, arm/hand/leg weakness, bladder control and walking improved). My tinnitus ringing buzzing in my ears improved some, too. I had speaking issues like slurring my words and having a hard time speaking at times like my tongue control improved. I think many of my symptoms were neurological.

Have you had a full iron and thyroid bloodwork panel done? Sometimes they do standard tests and don’t go further if they look “normal” but expanded panels will show a lot more. I had iron deficiency and thyroid autoantibodies (Hashimoto’s) but normal on standard tests but abnormal on expanded panels. Have they tested you with full panel for mononucleosis/Epstein Barr virus or have you had COVID/mRNA injections?

Jump to this post


Replies to "@erivas110818 I am so sorry to hear all of what you are dealing with at such..."

my ecg came back completely normal so no heart problems thank god. i have gotten an iron and thyroid panel but i believe they were just the run of the mill type, which came back normal. i did a barium swallow which came back completely normal. i will ask my nuerologist to do another mri and that may be helpful. ive also considered a lumbar puncture but i fear that would be too extreme and they would not order one for me. thank you for the input!