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Mary Jane, thank-you for your reply. May I ask what your lung condition is? I have PF & BE. I have been diagnosed for about 3 1/2 years. Never had this problem until recent lung infection. My disease of BE creates a lot of extra mucus, does yours? If so how can we do proper airway clearance without being well hydrated??? All of the airway clearance helps to prevent reoccurring lung infections. I never had low sodium since diagnosed. Until the lung infection, so I’m assuming that was the cause. But is it always permanent. I realize it’s a double edged sword, damned if you do or don’t. Anything you want to call it. But how do you specifically manage your condition? I will gladly take any advice & help I can get. Thank -you.
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I have bronchiectasis and am being treated for MAC (been on the Big 3 for 13 months testing negative since April of this year) and chronic pseudomonas. My BE is the dry kind so I have very little mucous and find it difficult to get a sputum sample. I believe my SIADH is a permanent condition because I have had it for over 10 years. I do daily airway clearance with 7% saline even though I produce very little sputum. I think the sodium is helpful in creating an unpleasant atmosphere for the bacteria.
The low sodium was difficult to manage at first but you will soon develop a routine and you will know exactly how much water you can drink. You may need weekly testing (if your doctor will allow it) until you settle on the right amount. I measure my allotted amount of water each night and then spread it out over the next day. I find I am thirstier at night so I plan to have water available at the end of the day. Also, you need to account for hot weather when you can increase your fluids to keep from getting dehydrated. It is a delicate balancing act but you will eventually develop a system that is easy to manage.
Mary Jane Childs
Marietta, Ga