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Complications with Peripheral Neuropathy
Chronic Pain | Last Active: Sep 7 9:22pm | Replies (28)Comment receiving replies
I can relate. I can't find a neurologist that can tell me what is going on, but sometimes my whole body starts spasming, jerking. I'm wondering if that means mine has also advanced to the central nervous system. If so, like you said, they can't seem to find any treatment plan. The surgeon keeps saying if will get less and less, it's the nerves reenervating or something like that. In the meantime they just give me muscle relaxers like you said that do nothing.
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I saw my neurologist this week and he is saying that mine has advanced to the central nervous system which is interpreting more and more normally benign contact with threats(paresthesia of skin, heperesthesia and other chronic pain). And yep, he doubled my baclofen again. He stressed mild exercise such as walking and water aerobics as important to maintain muscle strength but again no other treatment plan. I’ve stopped seeing my neurosurgeon. He was leaving it up to me but wanted to put two posterior rods in my neck to stabilize it. C5-C6 haven’t fused and kyphosis has started again. He said it was a 50/50 chance that the surgery would stop the nerve hypersensitivity but considering this started after the original acdf as hypersensitivity to metals there’s no way that I’m willing to have more metal put in my neck. I think we’re in the same situation where our symptoms are falling in a grey area where no effective treatment is known and meds to lessen the symptoms temporarily are all they have in their bag for us.