@mdcatlin I am so very sorry. Augh! I understand there are cycles of better functioning (ironically called "regression") and worse functioning as one spirals in their decline. I don't know for sure, but it makes sense to me that this would happen in the MCI phase as well as later phases.

I don't see much about the MCI phase either so I was grateful to see your post and wanted to let you know that I relate to what you are saying. "Cycles" is a good word. I get the feeling this is the easier phase (?) and that makes it more daunting.