Hi All- I'm wondering if any of you have hypermobility (Ehlers-Danlos or Hypermobility Spectrum Disorder), and if so how was your experience with PRP? Did you require multiple treatments? How was the pain during and after injection?
I'm looking into this because my doctor told me she's had hypermobility patients who have had positive experiences with PRP. And as you know, it's expensive...and may require repeat treatments.
I have osteoarthritis in my hip related to hip dysplasia and also chronic knee pain. Ortho is recommending a steroid injection for my hip (because, of course, they always recommend that), but I'm uncomfortable with the general risks and there are additional risks because I'm hypermobile.
With PRP, there seems to be less risk, but there's the cost and the chance it doesn't work. But I'm sort of more comfortable with that than I am of the risk of making my situation worse with the steroid injection. Any insights welcome. Thank you!
My daughter has subluxation in her joints- hyspermobility causes them to shift. She had two surgeries at age 10 to tighten knee then ankle, spent some time in a wrist splint, has had shoulder and SI joint issues especially SI. She has autoimmune disorders: type 1 diabetes, celiac, lupus.
The ONLY thing that has helped her in the last 20 years is PRP. She did one PRP on SI joint after 10 years of PT that had no effect or even harmed. Then another PRP on a knee. Both have lasted 10 years+. Often there is leftover so more than one joint can be treated. She had relief in 24 hours.
Of course, she is clearly a responder. But PRP does tighten loose, moving joints. Best $1000 I ever spent.