Small Fiber Neuropathy and Vitamin Deficiency

Posted by kfrenc04 @kfrenc04, Aug 22, 2024

What vitamins should I be taking? I have tremors all over my body. Almost like Parkinson’s disease. Is this a vitamin deficiency or part of my disease? Also,, itch all over my body all the time. Worst towards end of day. Doctors don’t know anything about my disease. No help there.
Thank you

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suetex | @suetex | Sep 6, 2024

In reply to @bob1946 "No& I take no meds. I wear foot braces which help me walk." + (show)

I suggest you have a rheumatologist do some testing on you. It might discover or ellimiate some issues.

bob1946 | @bob1946 | Sep 6, 2024

Thanks see if I can find one.

kfrenc04 | @kfrenc04 | Sep 7, 2024

Thank you

shordae | @shordae | 4 days ago

In reply to @celia16 "Yes, I had Vitamin B12 deficiency that had been undertreated months earlier. He ordered 1000 mcg..." + (show)

How is your numbness? Did that reverse from B12? Are you taking it orally or injecting?

celia16 | @celia16 | 4 days ago

In reply to @shordae "How is your numbness? Did that reverse from B12? Are you taking it orally or injecting?" + (show)

My original number was 170. I have no idea how long it was at that level. Sigh. Apparently, I don’t absorb it well. I initially took injections, but then my neurologist said sublingual was just as good, so switched to that.

My smell/test disorder resolved a few months ago and they returned. (Sadly, the constant bitter taste remains)

The numbness in my feet has decreased substantially. I’m not celebrating yet, but I barely notice it anymore. The one intermittent burning spot on my rightfoot has subsided too. Only feel it slightly once a week.

What I do still get occasionally, is awaking to one of my hands feeling asleep. It wakes up when I move it. I don’t know if that is related or not. It only happens when in bed on one side….wondering if that is spine issue. Idk.

At the same time I have improved B12, I have also improved my a1c. I’m type 1. So…that can only help too. I additionally work out almost daily. The improvement could be attributed to one or a combination of factors.

What I do recall is that I received inconsistent answers as to whether the numbness in my feet could be reversed. I was very concerned. So, this is very exciting for me.

Now I’m hoping the bitter taste and hand issues can resolve. It’s been over a year.

shordae | @shordae | 4 days ago

In reply to @celia16 "My original number was 170. I have no idea how long it was at that level...." + (show)

That's amazing! I'm so happy for you! I have small fiber all over and the numbness is really scaring me 🙁

celia16 | @celia16 | 3 days ago

In reply to @shordae "That's amazing! I'm so happy for you! I have small fiber all over and the numbness..." + (show)

I can relate to that. It’s a difficult thing to describe. The feeling to me is very disconcerting. The numb sensation, when it’s constant can really be distracting and uncomfortable, imo. No amount of stomping, rubbing, or massaging would get it out. So, I’m so grateful that it’s dissipated so much.

It was a struggle mentally to deal with it. I got so many different answers about what to expect. So, I’m going to hold on to hope that my other issues will resolve too. I have to keep the faith it will get better. I hope yours does too. I’m not sure if I’ll ever know exactly what caused mine, but I realize it could have been any one or a combination. My goal is to work in continued heath, nutrition and fitness. I’m still seeing the ENT, neurologist and rheumatologist.

Have you tried any treatments?