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Endometrial Clear Cell Cancer: Looking for survivor stories and info
Gynecologic Cancers | Last Active: Sep 14 8:29am | Replies (35)Comment receiving replies
Thanks for responding. I was diagnosed in July 2024 with clear cell uterine cancer. I'm have a mixed clear cell serous HER2. Stage 3. But in saying that everything was contained no lymph node involvement or cells in pelvic washing. So that's good. I'm had one round of chemotherapy. I feel great but my white blood cells are low and the freaking doctor's office choose to message me last night at 6 pm. I have called and message them and all I have is crickets. I'm so angry I have no one to ask important questions.
I have a second opinion appointment in 2 weeks. I have the attitude that if he seems right and I get assurance when things happen especially the first will I get to speak with a person about what to do I switching doctors mid stream. I've lost confidence in my current guy's staff
Replies to "Thanks for responding. I was diagnosed in July 2024 with clear cell uterine cancer. I'm have..."
Last night my doctor called me. I really like him. He said to just call or message him. Cut the staff out.
I told him might have over reacted. He said no you didn't you have cancer and it's scary and you needed answers. He does call me that was his 5th call to me in 9 weeks.
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I’m sorry you are not getting the support that you need. I did change doctors in the beginning. My daughters with with me at the first oncologist meeting and that doctor and her staff did not follow through with getting my surgery scheduled for over two months out and they knew it was cell clear endometrial cancer so my daughters encouraged me to switch to Mayo and I am so grateful that I did. I actually had my surgery, recovery time and my first round of chemo before the date scheduled for my surgery at the other place. So that’s my good experience with finding the right team.