Can't remember if I discussed this or not but after going in for scans every 3 months for a couple years now my new oncologist wants me to wait 6 months.. he is very concerned about the radiation levels I have been exposed to ( in my head I wonder if that really matters) kicker is I was told it was back ...metastasized to 4 areas but looked stable. I told him I didn't know if I could wait that long.... the mental aspect of waiting may be more than I can take especially since he wants to only do a MRI... NO PET/CT... not sure how they do a comparison to all previous PETs to just a MRI ????? Would welcome any informed info !!!!
The last time they switched me from 3 months to 6 month scans I had my recurrence. I had mentioned I had terrible back pain and was informed scans looked good AND PAIN WOULDN'T BE FROM CANCER ANYWAY (?????). So I had an MRI to see if I had an injury causing the pain and the result was no injury but what appeared to be a recurrence of cancer which had metastasized to my back...this was 10 days after getting an all clear from my oncologist. A biopsy was done and it was malignant went on to have chemo as a palliative treatment. Just mentioning this as a background to establish why I am so nervous about being backed off to 6 months.
P.S. my back is just killing me again (lets hope not literally 🙂 but they say would not be from tumor ??? I guess I just don't get why not? at least it hasn't been explained to me why their opinion is such....that cancer doesn't cause pain???? really????since when???especially involving my spine????
I waffle between wanting/needing more information and being on info overload, can't keep all the contradicting information/opinions straight.

Jump to this post