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Chronic pain in Neck, shoulder and arm

Chronic Pain | Last Active: Sep 15 12:28pm | Replies (18)

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@jack993

Thank you Misty for your reply.

Could you please tell me, what are the tests that you've done and were diagnosed as CRPS? Because in Jordan (where we live) doctors diagnose any patient that his/her symptoms are not direct, they could diagnose CRPS or fibromyalgia,… etc. with no solid evidence.

Hope you will get well soon dear.

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Replies to "Thank you Misty for your reply. Could you please tell me, what are the tests that..."

I’m in Australia.. 42yr old female
Crps here is diagnosed by the Budapest criteria, there are no definitive tests.

I had a 3D bone scan and ct spect scan all results were normal.
I had an EMG 3 months post adcf which was normal, but I did have signs and symptoms of crps such as sensitivity to touch, constant burning/tingling pressure pain, swelling, stiffness and both colour and temperature changes.
12months after this I spent a week in hospital having a continuous ketamine infusion, I had another EMG this time it showed damage/denervation at the C7 nerve root.
I also had a brain scan mri which showed I had lesions on both frontal lobes but neurologist assured me they were nothing to cause concern, probably just because I suffer from chronic migraines, no other lesions were found anywhere in the spine.
I also had a lumbar punch in order to check for an autoimmune component but thankfully they were all clear.

Due to the nerve damage (which took 12months to show on EMG) I have been diagnosed with CRPS type 2 in right upper quadrant and crps type 1 in my right lower limb.

I just had an IME with the work cover dr, he made the assumption that my lower limb symptoms could be due to osteoarthritis but I have just had X-ray of hip, knee and foot and results are all clear, they confirm that there is no other reasonable explanation for my lower limb symptoms other than CRPS.

It’s been a long road, I’m almost 3 years in now, keep advocating for your wife I’m sure she appreciates your support
I wouldnt wish CRPS upon anyone, it’s horrible, I truely hope you both get to to the bottom of what’s going on

Cheers Leigh