Hi @carleena
I’m sorry you’re experiencing this; I can imagine how distracting and uncomfortable this may be for you. This may or may not be helpful to you, but I had a range of sensations in my vulva following cancer surgery in my pelvic area almost two years ago now. Because my urinary and bowel systems were also impacted, I was referred for pelvic PT. When I happened to mention these sensations that would wake me up from sound sleep or make drifting off to sleep nearly impossible, she assessed for neuropathy. She was quite knowledgeable about nerve pathways throughout the pelvis and how they interact with muscle, bone, tendons, bloodflow, etc. She taught me some simple “neural glide” exercises that, lo and behold, made the problem get better and then go away. It has come back occasionally (usually b/c I’ve gotten out of the habit of using my estrogen cream and the tissues have atrophied), but I can restart the cream and resume the exercises and the situation resolves again. Pelvic PT, if you haven’t explored it, might be worth a look (or a second look). That was a reminder to me, too, that hormone levels interact with all of these systems and tissues as well, so keep that in mind as you sleuth this out. And, just like any profession, there is a range of training, experience, skill and “bedside manner” among pelvic PT’s, so I would encourage you to research your options if this is something that interests you.

With hope that you will find something that brings you relief,

@gynosaur