← Return to Endometrial Clear Cell Cancer: Looking for survivor stories and info

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@naturegirl5

@ejohn Hello and thank you for providing support to @teechur89 and to this Discussion.

Thank you, too, for letting me and others know that you are 3 years into cancer survivorship after a diagnosis of Clear Cell Uterine Cancer, Stage 3. I know only too well how the spectre of recurrence looms in the back of one's mind. Getting those thoughts "out there" with a counselor is a good idea. Thank you for sharing that.

Are you still returning for surveillance appointments? If yes, how often and what tests or exams are done?

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Replies to "@ejohn Hello and thank you for providing support to @teechur89 and to this Discussion. Thank you,..."

Hi Helen and all, I forgot to say I was mixed endometrial, I call it regular and clear cell, it was also in one lymph node. Very grateful to be at this place over 3 years after treatment. Also on a positive note, I was received the diagnosis on Friday at 8pm of Labor day weekend. I realized last monday I didn't even think of it at all that weekend! I am due for a follow up 6 months from my last with exam, blood work and CT scan. I had to talk them into 6 months, they were trying to move me to a year. Very frustrating that something so high risk would be just moved further apart. very much determined by insurance. I have not found any uterine clear cell specialists so that makes it harder. I got another post treatment opinion from a lovely doctor who is a breast specialist. She said I had a 20% risk of breast cancer and should be scanned 2x a year. That makes no sense to have breast scans more often than for clear cell. Very frustrating.