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Endometrial Clear Cell Cancer: Looking for survivor stories and info
Gynecologic Cancers | Last Active: Sep 14 8:29am | Replies (35)Comment receiving replies
Hello teechur, I am sorry you’re struggling, but glad to hear you are done the treatments. I am very grateful to be three years cancer free after my stage three clear cell uterine diagnosis. I also had chemo radiation and brachytherapy. I am not sure what you have been told and I hear a lot of people on the Facebook group expecting it to return. I know it has a higher rate than other cancers of returning, but there are many ladies who are doing well, even after quite some time. I am doing my best to stay positive but no, it is very scary and worrisome. I also found it helpful to speak with the counselor at the center where I was treated. Please let me know how I can support you.
Replies to "Hello teechur, I am sorry you’re struggling, but glad to hear you are done the treatments...."
Thanks for responding. I was diagnosed in July 2024 with clear cell uterine cancer. I'm have a mixed clear cell serous HER2. Stage 3. But in saying that everything was contained no lymph node involvement or cells in pelvic washing. So that's good. I'm had one round of chemotherapy. I feel great but my white blood cells are low and the freaking doctor's office choose to message me last night at 6 pm. I have called and message them and all I have is crickets. I'm so angry I have no one to ask important questions.
I have a second opinion appointment in 2 weeks. I have the attitude that if he seems right and I get assurance when things happen especially the first will I get to speak with a person about what to do I switching doctors mid stream. I've lost confidence in my current guy's staff
Thank you for responding. I am new on this forum and I’m not sure what or how to ask for support. It just feels good to have someone in a similar situation to listen to my fears and worries. I appreciate your positive words of encouragement. I’m glad to hear there are others who are doing well. Can I ask more specifically how you reached a counselor? Were you referred to someone special, do you go in to meet with them or talk on the phone or online.? I’m off on my last camping trip and won’t be able to check back here for another week
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@ejohn Hello and thank you for providing support to @teechur89 and to this Discussion.
Thank you, too, for letting me and others know that you are 3 years into cancer survivorship after a diagnosis of Clear Cell Uterine Cancer, Stage 3. I know only too well how the spectre of recurrence looms in the back of one's mind. Getting those thoughts "out there" with a counselor is a good idea. Thank you for sharing that.
Are you still returning for surveillance appointments? If yes, how often and what tests or exams are done?