← Return to Limbic Autoimmune Encephalitis. Anyone out there who is ?

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@dach

Hi Valm,
Thanks for the reply, it looks like we were both diagnosed with the same Limbic Disease around the same time.
If I can ask, have you been able to get some memory back ? I ask because I haven’t been able to remember any of my life. Every once in a while I will see a picture and it sometimes looks familiar. I have read on the Mayo Site that once you loose your memory with Limbic, it is very rare to get it back. Something about Limbic that damages your brain and the memories are gone forever.
Have you heard about similar symptoms ?
I get it on the sleep, I have always been a night owl so it is a challenge.
It’s been nice talking to you and others, have yourself a great day.
BTW, I live in Massachusetts, believe it or not the temperature last night was 51 degrees. Take care

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Replies to "Hi Valm, Thanks for the reply, it looks like we were both diagnosed with the same..."

Heck send some of that 50 degree weather this way ok? What kind of seizures did you have? I think that memories returning would depend on the severity of the seizure and the type as they affect different parts of your brain. I lost miscellaneous chunks of memory. Some things in the same time frame I had no problem remembering, but most other memories were lost. Some things that I hadn't remembered for decades, those memories popped up. There seemed to be no rhyme of reason for which ones came back. Heck, there were some that I wished would never return, yet they still were here. Our brains are absolutely fascinating. I know our bodies are affected by circadian rhythms and if I'm not mistaken, that occurs around 11 pm for me. So I try to be asleep by then. I believe that has helped with my memory getting better. Take care of yourself and try to get used to the "new you". Appreciate each day, each moment because we've been blessed to still be here.