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@langfordsherrie

There is a drug out there called Pazopanib that is hard to get but is marketed worldwide sold under the name Votrient. It treats soft tissue sarcoma. It started as a trial but the company sold it to Novartis .
You might look into that. We were told it is hard to get but is possible because the drug is still out there.

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Replies to "There is a drug out there called Pazopanib that is hard to get but is marketed..."

Thanks Sherry. It has been mentioned by my guys too but I can find no mention online of use for CSC. They suggest use together with Pembrolizumab. But they are very very cautious about it and no confidence at all that it will help really. I must concede to feeling completely helpless.