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Struggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 22 10:04am | Replies (35)Comment receiving replies
Hi - I spoke with my transplant dr and we are moving forward with transplant. Likely to be admitted 3/4th week of October. Thank you for all your helpful comments. Im still feeling quite anxious but the potential risks of delaying felt even worse. I may have more questions about the transplant hospitalization and recovery process. Thank you all so much. This group is amazing
Replies to "Hi - I spoke with my transplant dr and we are moving forward with transplant. Likely..."
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Hi Deb, I know that was a big decision for you to make. But now the decision-making weight is off your shoulders and you can move forward. Personally, I feel you’ve made a positive step towards a healthy future. Going into this transplant in good health, before your condition possibly progresses to AML, works in your favor. 😉
My best advice is to not search the internet for information on the transplant. It can lead you down some rabbit holes of mis-information and also fill you with unwarranted stress.
Not to toot our own horn, but stick with Connect because those of us who have walked this path will be good and credible sources of information for you.
Check in with your transplant coordinator to get particulars for your clinic stay. I have a few links for you that aren’t specific to your transplant location but the basics of transplant and post transplant care are the same for all of us. So these guides may help you prepare for returning home, what to anticipate as far as avoiding infections and such.
Here are two of the best comprehensive guides I’ve found for transplant patients and caregivers. The first is from Mayo Clinic where I had my transplant. Take your time to look at the page. There’s tons of information and menus for caregivers and transplant experience.
Also, you will be receiving an allogenic stem cell transplant so skip the auto-transplant portion if you chose to read about the procedure. Keeping in mind, your experience won’t be at Mayo so things may be a little different.
https://connect.mayoclinic.org/blog/caregivers-for-bmt-car-t-and-hematology/tab/support/#ch-tab-navigation
This from Memorial Sloan Kettering:
https://www.mskcc.org/pdf/cancer-care/patient-education/leaving-hospital-after-your-allogeneic-transplant
You will have a new, functioning immune system but it takes a while for it to mature. It will never be as robust as your factory installed immune system but you can have an active, full life with a few precautions to avoid illness such as masking and lots of hand washing. But you’re not turning into ‘bubble boy’ from the Seinfeld episode. LOL.
Do you have any specific questions about, well, anything at all??