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CellCept

Autoimmune Diseases | Last Active: Sep 17 3:05pm | Replies (38)

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@pamelalaa

Thanks so much for the encouragement. I sure am worried but my question was more about understanding specific personal experiences. Reading the potential side effects from the drug manufacturers are only helpful to a degree.

I have a unique situation in that bc I feel like crud most the time & bc I have ADD & some sensory difficulties, I can ignore side effects for too long & not even realize I’m doing it. Then a week or two later I’ll talk to the doc, tell them what’s happening, and get calm/not so calm, “Um, I think it’s best you stop taking (fill in blank of upwards of five drugs I react to).”

The idea of giving myself a few days and then really checking in is so helpful. Thank You!

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Replies to "Thanks so much for the encouragement. I sure am worried but my question was more about..."

I’m also ADD and I find myself obsessing about things. I keep a journal which helps but then I go over it and over it like it will make a difference in anything. I just purchased a health journal off Amazon that’s a lot more organized and I’m hoping it helps. With ADD you tend to second guess everything. So keeping good records and knowing when a decision was made you didn’t do it without lots of thought.

I just read again what you put and I also find I ignore things till they’re pretty bad. Not like we are not self aware. You just train yourself to ignore your misery to try and live life. But sometimes we have to be aware that something has changed.