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I got three lumbar fractures in one moment of unwise movement with a DEXA score of -3.7. At -5.2 I would think you are at serious risk. If it were me, I would take it easy until it is safer- stairs, ankle weights, treadmill are not going to bail you out right now, but medications will help a lot (in my experience).
Have you considered Tymlos and then Evenity to extend the time you are on an anabolic? Many doctors seem to be prescribing Evenity these days for severe osteoporosis because it works fast, so perhaps that is the best course, but you could discuss it with your doctor. Tymlos works well for spine and I went from -3.7 to -2.5 in less than 18 months. For you that "excellent gain" of 20% would still leave you in the -4's. Like many of us you will probably be on at least one or two other drugs.
I am not trying to be negative but only give you my experience so you can hopefully avoid it.
I understand the benefits of exercise and diet but please be careful. My fractures are not only painful but disabling in a lot of ways. And I have yet to find a safe physical therapist. My PT does massage only and I am grateful for her caution.
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I forgot to mention, I sometimes wear a hip protector.. I have two of them.
One is the one Margaret Martin recommended, looks like exercise shorts,
and the other from Amazon worn over clothes
Hello @windyshores , I’ve mentioned to you about my debilitating back pain and fractures in my spine. I know you were in a lot of back pain too. I had my 4th Evenity shot a couple days ago. It was unusually painful and my back pain increased significantly. Today I started having very strange pain on both sides of my middle back. Not sure if this is related to fractures or muscle pain. Have you ever experienced pain traveling from lower to middle and to the sides of your back? What medication you used for pain? I was on Tramadol but stopped working. My pain doctor suggested to try nerve ablation L5, L4,L3 and also to try muscle relaxers.I hoping you can give me some advice I am new to this and don’t know what to do. My endocrinologist bagging me to stay on Evenity. I did blood test for CTX it went from 647 to 332. She thinks this is a good sign. I am not sure why I feel worse.
Thank you for your suggestions. I had no idea that you could do two different drugs. I am 7 months into Evenity injections. Do you know if I it's possible to do Tymlos after? You got remarkable results. I'm in a similar situation - fracture of the T12
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Hello windy.. I have been lucky, I have no back pain. A recent spinal X-ray
showed something, but it doesn’t indicate when it happened - as I recall
it’s considered moderate. This may have occurred back when, unknowingly I
was moving heavy planters in backyard.
Yes I considered Forteo, which is now off patent, in Canada I think called
Osnuvo or teva- teriparatide.
I don’t think Tymlos is as easily available here. I have read about how
you used Tymlos and found that interesting.
Right now, with my T scores, and never taken any other medication, the cost
for Evenity would be very minimal, or subsidized.
When I compared benefits between Forteo and Evenity, there did not appear
to be a great difference. Results vary from individual to individual.
Forteo would take two years, with daily injections. Because it has been
around longer than Evenity, more is known about it and considered ‘safe’…
as you know..all medications have risks, side effects, from ONJ, atypical
thigh fracture, and maybe maybe not osteosarcoma..
My rheumatologist told me the cost for Forteo would be around $10,000 a
year. She wasn’t sure about cost for Forteo generic.
She was the third specialist suggesting Evenity.
It is stomach churning realization that I will have to continue to be on
medication for many years.
I have this resistant gene for medication:
I was told to take statins for cholesterol several years ago. I didn’t.
My latest cholesterol test showed it was curving down .My doc asked: what
are you doing? No nothing. In fact I gained 10 lbs the last few months,
eating more , more cheese, to help heal a broken wrist from fall
(surgery).
That’s how my osteoporosis was discovered. Called a fragility fracture.
My point: if I had been on statins, my doc would have said .. good, statin
is working.
About doing stairs, or threadmill. I think it’s good, however you can, to
do some cardio, as we get older the risk for cardiovascular risk increases.
I don’t know if resistance bands works cardio. It does muscles, muscles
pulling on bones.
With Evenity, there is going to be blood work, at the 6 months mark, to
check cholesterol (LDL) and A1C..
It makes sense,to be careful about exercises, I don’t think heel drops, and
certainly no stomping. For now.
If Dr Belinda Beck had one of her Bone Clinics Onero programs here, I would
join. One of her participants had severe T scores.
Nice to connect.. when I sent off my first…
hello anybody there.. I thought it went into the ether.. thanks Windy for
giving my post a home.
Maybe next post: anyone knows/ update about osteoboost belt?
I have.. need to find if you want.. links to LIV study.
Any thoughts about why there is this global osteoporosis problem?
and NASA is working on meds, for astronauts in addition to ARED.